Halloween event in Fulwood for Daisy Garland epilepsy charity

A mum whose son can suffer up to 150 seizures a day is organising a Halloween fund-raiser for an epilepsy charity.
By The Newsroom
Published 23rd Oct 2018, 16:30 BST
Updated 23rd Oct 2018, 18:13 BST
Halloween funHalloween fun
Halloween fun

Nina Carberry, of Woodplumpton, is hosting a Halloween-themed charity night at St Anthony’s Social Club, in Fulwood, this Saturday from 7.30pm.All money raised will go towards Daisy Garland, which has supported her 14-year-old son, Jamie, through his epilepsy.

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Nina said: “Jamie was diagnosed with epilepsy when he was four. At first he was having a few small seizures which lasted only 40 seconds and then he started getting a few large tonic clonic seizures. Unfortunately his condition is drug resistant.

Jamie CarberryJamie Carberry
Jamie Carberry

“He has had many medications and some have been successful, taking him from around 150 seizures a day to around average 15 small ones per day.“He also suffers with large tonic clonic seizures at least once a week. Jamie can never be left on his own and can’t lead a normal life like others his age. He attends Moor Hey School, in Lostock Hall, which has been fantastic.

“The Daisy Garland charity has been amazing, assisting with getting Jamie on a ketogentic diet and providing a sleep alarm if he suffers any major seizures during the night. These can cost up to £900.“We now want to raise money to help other children and raise epilepsy awareness.”

The Halloween family party event includes fancy dress, food, a DJ, raffle and bingo.Tickets for the night are £5 and are available from St Anthony’s Social Club or by calling Nina on 07540084058.

Related topics:Fulwood