A special bed aimed at improving the life of a nine-year-old girl who has two rare conditions will be with her by Christmas, thanks to a successful fundraising appeal.
Lindsay Rambridge’s daughter Alice has a rare chromosome disorder called 1q21.1 duplication and also suffers from agenesis of the corpus callosum, which means there is no bridge in her brain.
The smiling schoolgirl has mobility issues, gets confused very easily, has global development delay, struggles to communicate and is often very poorly.
She was diagnosed as a child but doctors think there may be something else wrong and they are carrying out tests.
At the start of the year a fundraising appeal to raise £7,000 for the new specialist bed was launched and thanks to the generosity of the public the bed has now been ordered.
Family and friends have held various fundraising events including charity markets and taking part in sky dives to help raise the funds.
The Smiling Alice’s Appeal has been supported by Cash for Kids which has been instrumental in getting the appeal off the ground.
Today Lindsay, 37, said money is still coming in and fundraising will continue for maintenance of the bed and for a lighter wheelchair for Alice. She also said in the future she would like to help others in similar situations as well.
She said: “We started the appeal 10 months ago, it had been brilliant, it has been amazing. I can’t believe it, I never thought in a million years we would raise the money in this length of time. A lot of my friends said they thought it would take two years. We have had a really good response. I just want to thank everyone who has helped us get to our goal.”