DCSIMG

Safe kit needed for Elliot

Elliot Eland, 4, from Walton le Dale

Elliot Eland, 4, from Walton le Dale

A YOUNGSTER who suffers from a rare genetic condition needs a piece of specialist equipment so his family can finally go on holiday.

Elliot Eland, four, from Walton-le-Dale, near Preston, has epilepsy and Angelman Syndrome - one of the side effects of the condition is frequent laughing.

Despite his limited mobility he can crawl and pull himself up, but he has no awareness of danger, so at home he sleeps in a special high-sided bed.

The family needs a SafeSpace Voyager which is, in effect, a room within a room which offers a safe environment.

Mum Gale, 43, said: “Since Elliot has grown too big for a standard cot, we haven’t been able to go away on holiday because we know we can’t keep him safe at night.

“We would love to be able to rent a caravan and go away and the SafeSpace Voyager would allow us to do this. It would also mean we could stay with family and friends around the country.”

Gale and husband Craig are members of the Angelman Syndrome Support Education and Research Trust and found out about the kit at a conference.

It costs £2,754, so the family turned to disability charity Newlife Foundation for help.

Newlife has funded 242 Equipment Grants for children in Lancashire, totalling £358,639. It is currently working with 15 families in the county.

To help fund the kit contact the Newlife fundraising team on 0800 988 4640.

 

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