A little boy suffering from a rare genetic disorder attended a special Teddy Bear’s Picnic thrown in his honour.
Four-year-old Joseph Kendrick, who has Non-Ketotic Hyperglycinemia (NKH) - a genetic disorder affecting around 1 in 60,000 people - attended the event at the Sure Start Children’s Riverbank Centre on Brieryfield Road, Preston to help raise funds for the charity set up in his name, ‘Joseph’s Goal’.
When he was born, the youngster’s parents, Emma and Paul, who met at the University at Central Lancashire, were told it was unlikely Joe would live past day 10, and, if he did, it was almost certain he wouldn’t reach his first birthday.
But, proving the doctors wrong, Joe reached both milestones and continues to do “amazingly well.”
Mum, Emma said, “Joseph has shown everyone that he wants to fight all the way and so we are determined to fight on his behalf to help create awareness of NKH, find a better treatment for him, and hopefully one day find a cure for others like Joe who live with this condition.”
The fun filled family day out saw children bring along their own packed lunch and their favourite teddy bear to join Joseph, his family and friends at the picnic alongside VIP special guests and children’s favourites, Peppa Pig and Hello Kitty.
The children also took part in a Music Discoverer’s Sing-Along session with Rachel and guests and were treated to a special dance show from the Preston Rosettes Morris Dance Troupe.
Other events throughout the day included Paw-fect colouring/drawing competitions, Name the Bear, Teddy Tombola, Cub Cake & Bake Stall, Bear-ly Worn Clothing & Bear-ly used Toy stations, Bear-face painting and balloon modelling.
All donations towards the Joseph’s Goal charity are sent to the University of Colorado, who is the world leader in researching Joe’s condition.