When Jay Lynchehaun was diagnosed with a brain tumour in 2011 he discovered that support groups available to him were not exactly what he expected.
So he decided to set up his own.
The 27-year-old, from Read, near Clitheroe, had 60% of his tumour removed in an emergency operation and was prescribed steroids to reduce the swelling in his brain.
Six weeks of gruelling chemotherapy and radiotherapy, followed by a further 10 months of chemotherapy weighed heavy on Jay, who reached out for support.
Jay said: “I attended a couple of support groups but they just weren’t for me as they tended to be for people who were a lot older.
“Younger people don’t really like meeting up for coffee so I decided to start my own charity, Inbetweenears, for people aged between 18 to 40 who have brain cancer, through social media like Facebook and Twitter.”
Jay had visited his doctor a number of times after feeling “out of sorts” for a number of years.
He said: “I knew there was something wrong with me but did not know what so I went to see my GP who diagnosed me has having stress and invited me to talk to a counsellor.
“I didn’t go, I knew it was physical problem.”
It was only when his sister, who is a staff nurse on Blackburn Cardio Ward, saw stroke symptoms in her brother that he finally got his terminal diagnosis.
With the money raised for the Inbetweenears charity, Jay and the team fund research at UCLan’s Brain Tumour Research department.
Jay said: “Primarily we want men as males tend to get brain cancer more than women and we would like to try and determine why that is.
“That doesn’t mean women get out of it as your blood in needed for different research.”