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Baby Anthony has ‘just months to live’

Photo Ian Robinson
Baby Anthony Rushe who has an extremely rare condition Krabbe Disease which only affects one in 100,000 and it means he will gradually degenerate in the space of a year and lose the ability to hear, see, swallow, see and eventually breathe, pictured with his parents, Jenna Bannon and Tony Rushe

Photo Ian Robinson Baby Anthony Rushe who has an extremely rare condition Krabbe Disease which only affects one in 100,000 and it means he will gradually degenerate in the space of a year and lose the ability to hear, see, swallow, see and eventually breathe, pictured with his parents, Jenna Bannon and Tony Rushe

An anguished couple have spoken of their heartbreak after discovering their baby boy has a rare condition meaning he has just months to live.

Baby Anthony Rushe, who is six months old, began crying all the time and doctors and his parents believed he was suffering from a bad case of colic, a common condition in babies, linked to digestion and trapped wind.

However, Anthony’s parents Tony Rushe and Jenna Bannon, both 27, who live in Ashton, Preston, were devastated to find Anthony has a very rare condition called Krabbe Disorder, which only affects one in 100,000 babies.

The cruel disease means that even though Anthony seems healthy and well now, within months, he will deteriorate – losing the ability to hear, see, swallow and eventually breathe.

Dad Tony said: “Anthony is just so beautiful and perfect, we just can’t register that we will have to go to his funeral.

“To find out your child has a condition that will take his life when you thought it was just colic is unthinkable.”

Mum Jenna added: “Even though we are devastated, we are determined to enjoy the time we have with Anthony and create lots of special memories.

Full story in today’s Lancashire Evening Post

 

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